About Us

For more than forty years, EPI has provided personalized care, education, training, advocacy, and support solutions to meet the needs of people with developmental disabilities, epilepsy, and brain injury. We have an enduring legacy of partnering with those we serve and with their families.

EPI was founded by parents who could not find the services they needed for their children.  With dedication, courage, and creativity, these families built a better world for their loved ones.

We share our founders’ indominable drive to put first the needs and the dreams of the people we support.

With more than 900 employees, we now provide comprehensive services in over 22 counties in Upstate New York, from the Finger Lakes and Western NY, to the Southern Tier and Central New York regions.

What distinguishes EPI is our focus on offering progressive, tailored care solutions to people with developmental disabilities, epilepsy, and brain injury.  We are proud of our agility in adopting innovative service models that better meet the needs of the people we support to improve their health, wellbeing, independence, and social inclusion. We are passionate about doing the right thing. We work hard to earn the trust of the people we support and their families.  And we are committed to empowering people with disabilities to reach their individual goals and aspirations, and to live their lives to the fullest.


History

A group of parents, led by Patricia Ladd, formed the Epilepsy Association of Greater Rochester (EAGR) which provided epilepsy and seizure education services as well as support for children, adults, and families dealing with the challenges of seizures.

The Epilepsy Association of Greater Rochester held its first Chocolate Ball.

The Association opened the Supportive Apartment Program – often credited as the program that “turned on the lights” at EAGR. This program was the foundation of the organization’s future growth.

EAGR became a member agency of Al Sigl Center.

People Rebuilding And Living In Dignity (PRALID) started as New York State’s first organization specialized in offering community-based services to individuals with brain injuries.

PRALID was founded by Joanne Lampey. As a young man, Joanne’s son, Fred, sustained a brain injury and it was Joanne’s dedicated search for appropriate residential and rehabilitative services that led her to spearhead the charge that ultimately led to the founding of NYS Traumatic Brain Injury Waiver.

The Epilepsy Association of Greater Rochester held its first Camp EAGR – a sleepaway summer camp for children with epilepsy and their siblings.

PRALID opened Pinnacle, its first Individual Residential Alternative (IRA) home.

Howitt House opened.

EAGR opened its Syracuse office and became the regional expert on epilepsy and seizure education and services.

PRALID opened a group home in Mendon and its Day Habilitation Program.

EAGR opened Wagner House.

PRALID opened the Reeves IRA.

EAGR continued to expand and opened its Binghamton Office. It also changed its name to the Epilepsy Foundation of Rochester-Syracuse-Binghamton.

PRALID opened the Woodruff IRA.

EF of RSB opened Sheila’s House, named for Sheila Appleby, who retired this year after 15 years at the helm.

Epilepsy Scholarship Program began – awarded first 3 scholarships their first year.

The Epilepsy Foundation of Rochester-Syracuse-Binghamton and PRALID merged forming Epilepsy-Pralid, Inc. (EPI)

EPI opened the Slocum IRA, expanding residential services to Wayne County.

EPI held its first Camp Coast, a camp for young adults with epilepsy and other developmental disabilities.

EPI expanded its services in Broome County, opening two IRAs, Twist Run and Pigeon Hill. It started Broome Day Habilitation Without Walls (WOW) program.

Self-Directed services began.

EPI achieved CQL Accreditation.

EPI became a founding member of the Epilepsy Alliance America.

EPI expanded its services with the acquisition of Dazzle’s Respite program.

EPI opened (its 12th) IRA, Pinion in location

EPI facilitated the creation of its first Self-Advocate group.

EPI started launched its Recreation Respite program.

In response to its significant growth, EPI unveils its new name and logo. EPI now stands for Empowering People’s Independence, reflecting the agency’s deep commitment to provide innovative and individualized services to support the aspirations and needs of people with brain injury, developmental disabilities, and epilepsy.

As a founding member of Epilepsy Alliance America, EPI also rebranded its epilepsy services under the new name of Epilepsy Alliance of West Central New York to express our relationship with this growing national network of epilepsy service providers.

Contact

We are here to help. Get in touch with us if you have questions, need assistance or more information.

Email info@epiny.org

Phone (585) 442-6420