Epilepsy Resources

Here are a few links to resources you may find helpful. Contact us for more information, or if you have suggestions for other links.

General information about epilepsy

• Epilepsy-Pralid, Inc. - Facebook
• Epilepsy.com (National Epilepsy Foundation)
• Epilepsy and My Child Toolkit
• Johns Hopkins Epilepsy Center
• Upstate University Hospital - Epilepsy Monitoring Unit
• American Epilepsy Society
• Living Well With Epilepsy
• My Seizures No More
• Seizure Tracker
• Breathable Pillow
• Home Safety Considerations for people with epilepsy

Advocacy

• Talk About It
• National Epilepsy Foundation
• Epilepsy Alliance America

Alternative therapies

• Spectrum Creative Arts - music and art therapy
• Upstate Music Therapy Center
• Smart Watch Monitor
• SAMi Alert
• Spotted Rabbit Studio

Clinical Trials & Research Opportunities

• ClinicalTrials.gov
• Strong Epilepsy Center
• New Therapies Pipeline

Diet therapy in treatment of epilepsy (e.g. ketogenic diet)

• Charlie Foundation
• National Epilepsy Foundation
• Like our Facebook Page, 'Ketogenic Diet EPINY' for regular updates
• Pinterest Page for Ketogenic Diet Recipes

Equine Therapy

• O Horse! International Horse Directory - Find a equine therapy program near you!
• EquiCenter, Inc. - Monroe County
• InterAct - Equine and other psychotherapeautic methodologies, Monroe County
• Windhorse Farm - Equine Assisted Pyschotherapy (EAP), Monroe County
• S.T.E.P – Saratoga Therapeutic Equestrian Program
• Pegasus Therapeutic Riding - Putnam County Equine Therapy Programs

Medical Marijuana

• Governor Cuomo Annouces Agreement on Medical Marijuana
• Syracuse.com Article - Medical Marijuana Bill Passes
• Insys Therapeutics receives FDA approval for a cannabidiol-derived drug

Medication therapy

• Epilepsy Foundation - Seizure and Epilepsy Medications
• Epilepsy Medications
• Pharmaceutical Patient Assistance Programs

Pharmaceutical and medical device companies

• Abbott Laboratories
• Cyberonics
• GlaxoSmithKline
• Pfizer
• UCB
• NeuroPace
• Upsher-Smith
• Eisai

Scholarships

• EPI Epilepsy Scholarship
• Aaron Gregory Riley Scholarship
• UCB Family Epilepsy Scholarship
• Leah Marie Bollin Memorial Award
• Happy Valley Ventures Scholarship

Seizure Assistance Dogs

• Canine Partners for Life (CPL)
• Epilepsy Foundation - Seizure Dogs
• Paws 4 Ability: Seizure Assistance Dogs

SUDEP (Sudden Unexpected Death in Epilepsy)

• PAME (Partners Against Mortality in Epilepsy)
• SUDEP Institute
• North American SUDEP Registry

Women and Epilepsy

• FAQ: Pregnancy and Epilepsy