Here are a few links to resources you may find helpful. Contact us for more information, or if you have suggestions for other links.
General information about epilepsy
- Epilepsy-Pralid, Inc. - Facebook
- Epilepsy.com (National Epilepsy Foundation)
- Epilepsy and My Child Toolkit
- Johns Hopkins Epilepsy Center
- Strong Epilepsy Center at the University of Rochester Medical Center
- Upstate University Hospital - Epilepsy Monitoring Unit
- American Epilepsy Society
- Living Well With Epilepsy
- My Seizures No More
- Seizure Tracker
- Breathable Pillow
- Home Safety Considerations for people with epilepsy
Advocacy
Alternative therapies
- Rochester Music Therapy
- Spectrum Creative Arts - music and art therapy
- Upstate Music Therapy Center
- Parent Stress Intervention Program
- Smart Watch Monitor
- SAMi Alert
- Spotted Rabbit Studio
Clinical Trials & Research Opportunities
- ClinicalTrials.gov
- Strong Epilepsy Center
- HERO (Human Epilepsy Research Opportunities)
- New Therapies Pipeline
Diet therapy in treatment of epilepsy (e.g. ketogenic diet)
- Charlie Foundation
- National Epilepsy Foundation
- Johns Hopkins
- Like our Facebook Page, 'Ketogenic Diet EPINY' for regular updates
- Pinterest Page for Ketogenic Diet Recipes
Equine Therapy
- O Horse! International Horse Directory - Find a equine therapy program near you!
- EquiCenter, Inc. - Monroe County
- InterAct - Equine and other psychotherapeautic methodologies, Monroe County
- Windhorse Farm - Equine Assisted Pyschotherapy (EAP), Monroe County
- S.T.E.P – Saratoga Therapeutic Equestrian Program
- Athelas Therapeutic Riding - Otsego County
- Root Farm - Onieda County
- Southlands Foundation - Hudson Valley Region Equine Assisted Therapy Program
- Pegasus Therapeutic Riding - Putnam County Equine Therapy Programs
- Borrowed Freedom - Southern Tier Region, programs for children and adults
Medical Marijuana
- Governor Cuomo Annouces Agreement on Medical Marijuana
- NYS S7923 - Medical Marijuana Bill
- Syracuse.com Article - Medical Marijuana Bill Passes
- Insys Therapeutics receives FDA approval for a cannabidiol-derived drug
Medication therapy
- Epilepsy Foundation - Seizure and Epilepsy Medications
- Epilepsy Medications
- Pharmaceutical Patient Assistance Programs
Pharmaceutical and medical device companies
- Abbott Laboratories
- Cyberonics
- Glaxo Smith Kline (GSK)
- Lundbeck
- Pfizer
- UCB
- NeuroPace
- Upsher-Smith
- Eisai
Scholarships
- EPI Epilepsy Scholarship
- Aaron Gregory Riley Scholarship
- UCB Family Epilepsy Scholarship
- Leah Marie Bollin Memorial Award
- First in Family Scholarship (not epilepsy-specific)
- EverSpark Interactive JJ Hennessey Honorary Epilepsy Scholarship
- Happy Valley Ventures Scholarship
Seizure Assistance Dogs
- Canine Partners for Life (CPL)
- Epilepsy Foundation - Seizure Dogs
- Paws 4 Ability: Seizure Assistance Dogs
- Article: Predicting Seizures vs. Assistance During the Seizures
SUDEP (Sudden Unexpected Death in Epilepsy)
- PAME (Partners Against Mortality in Epilepsy)
- SUDEP Aware
- SUDEP Institute
- North American SUDEP Registry