Newly Diagnosed with Epilepsy or a Seizure Disorder?
Having a child or family member diagnosed with epilepsy can be a scary, isolating time for a family! Know that you are not alone! We have some important resources available on this page for those who have recently received a diagnosis of epilepsy. We encourage you to reach out and talk to one of staff members. Scroll down to book an appointment today.
Connect
Our Epilepsy Services staff is available for 30 min phone appointments – book a call today! We are available to answer questions, connect you with other families, or just listen.
Educate
Empower yourself and those in your child’s life! Make sure everyone knows how to respond appropriately to your child’s seizures. EPI staff are available for in-person or virtual seizure recognition and first aid training for:
- Family members and caregivers
- Schools – students, classrooms, health classes, teachers, bus drivers, nurses, and other school staff
- Day care centers
- and others!
Schedule an appointment above or email skorba@epiny.org to schedule an education session today!
We also offer a 60-minute on-demand training through the Epilepsy Alliance America. Click here to learn more & take the training.
Community
You are not alone in your epilepsy journey! Come to one of our support groups to connect with others going through similar challenges.
Rochester Epilepsy Support Group
Our Rochester Epilepsy Support Group meets the first Thursday of the month (except for June & July) at our EPI Offices at 1650 South Ave, Rochester, NY 14620.
Syracuse Epilepsy Support Group
Our Syracuse Epilepsy Support Group meets the first Thursday of the month (except for June & July) at the Community Library of
Virtual Epilepsy Support Group
Join us the second Thursday of most months for our virtual Epilepsy Support Group. All who are affected by epilepsy are welcome! Group is held from 6 pm – 7pm on Zoom.
Black Epilepsy Exchange
Join us the third Thursday of most months for our virtual Black Epilepsy Exchange., a group specifically for families of color affected by epilepsy and seizures. Group is held from 6 pm – 7pm on Zoom.
Additional Resources for Parents & Schools
Here are some downloadable tools and resources to use at home, at school, at daycare, or camp to help keep your child safe.
- Seizure Action Plan – quickly and effectively communicate to others what to do in the event of a seizure
- Rescue Medication Training Videos – learn from medical professionals the right way to administer these life-saving medications
- Seizure First Aid Poster – know the 5 important steps to seizure first aid
- MediTeddi – an adorable teddy bear that is a medication reminder and tracker
- Information for Parents from Child Neurology Foundation
Upcoming Events
See all events here.
Trunk or Treat
Join us at the EPI Rochester Office (1650 South Ave, Rochester, NY 14620) on Saturday, October 24th …
October 24 @ 11:00 am – 1:00 pmDinner with the Doctor – Rochester
Current knowledge about rare epilepsy syndromes and genetic testing in epilepsy has come along way! …
November 3 @ 6:00 pm – 8:00 pmTeen Epilepsy Weekend
Teens with epilepsy – join us at the Rochester Rotary Sunshine Camp on November 7 & 8, 202…
November 7 @ 10:00 am – November 8 @ 12:00 pm
Contact Us
EAWCNY has epilepsy educators focused on providing information and support to children, adults, and families dealing with the challenges of epilepsy. Contact the epilepsy educator in your area if you have questions about epilepsy, seizures or wish to learn more about our services.
Western NY/Finger Lakes/Rochester
Michael Radell
Education Coordinator/Camp Director
Phone: (585) 442-4430 ext. 2741
Email: mradell@epiny.org
Central/Syracuse and Southern Tier/Binghamton Regions
Collin Horak
Intake and Education Coordinator
Phone: (315) 477-9777 ext. 2904
Email: chorak@epiny.org