Epilepsy Resources

For more than 40 years, we have been providing services for children and adults with epilepsy and seizure disorders in Upstate New York.

As a founding member of the Epilepsy Alliance America, Epilepsy Alliance of West Central NY has many resources available to support individuals and families dealing with the challenges of seizures and epilepsy.

Epilepsy Alliance West Central NY Resources

EAWCNY Brochure
Comprehensive resource of the epilepsy services available in the Finger Lake, Central, and Southern Tier regions of NYS.

Camp EAGR brochure
A one-week sleepaway camp for kids with epilepsy and their siblings, aged 8-17.

Camp Coast flyer
A one-week sleepaway camp for young adults (18+) with epilepsy and intellectual/developmental disabilities

EPI Scholarship Application
Scholarships for college-bound and enrolled college students who have epilepsy or a seizure disorder.

Physician’s Release Form

STEPS Tool
A one-page guide to help people with epilepsy and seizures have more productive conversations with their doctor. Thanks to SK life science for creating this tool!

STEPS Herramienta diálogo

Seizure Action Plan
Seizure Action Plan to help care givers appropriately respond to your or your child’s seizures.

Plan de Accion para las Convulsiones Aguda

TRUST – SEIZURE FIRST AID
A quick guide to seizure first aid (downloadable and printable)

Primeros Auxilios Convulsiones

COVID & EPILEPSY
A comprehensive seizure first aid poster that includes information on how to safely respond to someone having a seizure during COVID.

Primeros Auxilios Para Convulsiones

Seizure Recognition and First Aid OnDemand Training

This training is designed to give school personnel the critical information needed to best support students with seizures and epilepsy. While this training addresses specifics about the school setting, anyone seeking to learn the basics about epilepsy and seizures would benefit.

Rescue Medication Videos
Learn about when and how the use the three most common types of rescue medications for seizures. Thank you to EAA Member Valley Children’s Healthcare for producing these educational videos.

Seizure ID Bracelet Program

Receive a $35 coupon to purchase a Seizure ID wristband or other product of your choice at getmyid.com. This EAA program is generously funded through a grant from Greenwich Biosciences, now part of Jazz Pharmaceuticals

Epilepsy Alliance America Lorna Myers Psychogenic Non-Epileptic Seizures (PNES) Scholarship Fund

A college scholarship for people diagnosed with psychogenic non-epileptic seizures or attacks.

The UR Medicine Epilepsy Clinic at University of Rochester Medical Center, Rochester NY, has multiple clinical trials that are looking at new anti-seizure medications and devices. Currently, there are studies for people with focal epilepsy, CCM-related epilepsy plus studies of two different rescue medications. If you are interested in learning more, please contact the Epilepsy Research Office at 585-275-0404 or click this link for more details.
https://www.urmc.rochester.edu/childrens-hospital/pediatric-epilepsy-program/research-clinical-trials.aspx

Upstate University Hospital, Syracuse NY, also runs clinical trials on anti-seizure medications. Visit https://www.upstate.edu/healthcare/clinical-trials.php for more information.

Find Other Epilepsy Clinical Trials
https://www.cdc.gov/epilepsy/managing-epilepsy/clinical_trials.htm

Epilepsy Alliance America Lorna Myers Psychogenic Non-Epileptic Seizures (PNES) Scholarship Fund
https://www.epilepsyallianceamerica.org/scholarships/lorna-myers-pnes-scholarship-fund/

FACES Epilepsy
http://faces.med.nyu.edu/events-programs/college-scholarship-program

UCB Family Epilepsy Scholarship Program
https://www.ucbepilepsyscholarship.com/

NOTE: This is list for informational purposes only. EAWCNY does not endorse specific neurologists.