Support Groups and More!
We host support, wellness, and recreational groups as well as social events for people affected by epilepsy of all ages, providing opportunities for those impacted by seizures to meet others who are confronting similar challenges.
Currently offered groups:
Virtual Epilepsy Support Group
A virtual monthly support group for parents and adults with epilepsy. This group meets on the second Thursday of every month (except June & July) from 6-7:00pm.
B.E.E: Black Epilepsy Exchange (flyer)
A virtual monthly support group for people of color affected by epilepsy. This group meets on the third Thursday most months from 6-7:00pm.
EPI Rec (register)
A social program for the whole family! This program meets quarterly at various venues. Past activities have included bowling, mini golfing, and virtual Bingo. Dates and times vary per activity, check out events calendar for up-to-date information.
Healing After Loss: Epilepsy Support Group
A monthly support group for anyone who has lost a loved one due to complications from epilepsy. This group meets virtually the 4th Wednesday of every month from 6:30-7:30pm.
PACES is an eight-session epilepsy self-management program for adults with active seizure conditions. In a group setting, participants develop coping and goal-setting strategies that improve self-management of epilepsy, depression, anxiety, and improve overall quality of life. This group is offered at various times during the year.
EPI Art (register)
A 6-week art program for people with epilepsy designed to provide a safe space to talk about the challenges epilepsy and seizures can present while creating expressive art. For 2023, this group will be offered in person in Fall.
A 6-week, program that’s specifically geared to help young adults with epilepsy and I/DD better manage stress and anxiety. This group is offered at various times during the year.
HOBSCOTCH is an eight-week program for adults with epilepsy who have self-identified memory problems. Program participants work one-on-one with a memory coach to find ways to manage and cope with memory problems in order to lead happier, more productive lives. This program is offered year-round.
EAWCNY has epilepsy educators focused on providing information and support to children, adults, and families dealing with the challenges of epilepsy. Contact the epilepsy educator in your area if you have questions about epilepsy, seizures or wish to learn more about our services.
Western NY/Finger Lakes/Rochester
Education Coordinator/Camp Director
Phone: (585) 442-4430 ext. 2741
Central/Syracuse and Southern Tier/Binghamton Regions
Associate Director of Epilepsy Services
Phone: (315) 477-9777 ext. 2906