Support Groups/EPI Rec/EPI Art/Project Uplift

We host support, wellness, and recreational groups as well as social events for people affected by epilepsy of all ages, providing opportunities for those impacted by seizures to meet others who are confronting similar challenges.


Currently offered groups:

Rochester Epilepsy Support Group

A monthly support group for parents and adults with epilepsy. When offered in-person, a dinner is provided. This group meets on the first Thursday of every month (except June & July) from 6-7:00pm.

Syracuse Epilepsy Support Group

A monthly support group for parents and adults with epilepsy. When offered in-person, a dinner is provided. This group meets on the first Thursday of every month (except June & July) from 6-7:00pm.

Virtual Epilepsy Support Group

A monthly support group for parents and adults with epilepsy offered virtually, every month. This group meets on the second Thursday of every month (except June & July) from 6-7:00pm.

Healing After Loss: Epilepsy Support Group

A monthly support group for anyone who has lost a loved one due to complications from epilepsy. This group meets virtually the 4th Wednesday of every month from 6:30-7:30pm.

EPI Rec (register)

A social program for all those affected by epilepsy that meets quarterly at various venues. Past activities have included bowling, mini golfing, and virtual Bingo. Dates and times vary per activity, check out events calendar for up-to-date information.

EPI Art

A 6-week art program for people with epilepsy designed to provide a safe space to talk about the challenges epilepsy and seizures can present while creating expressive art. For 2023, this group will be offered in person in Fall.

PACES (register)

PACES is an eight-session epilepsy self-management program for adults with active seizure conditions. In a group setting, participants develop coping and goal-setting strategies that improve self-management of epilepsy, depression, anxiety, and improve overall quality of life. This group is offered at various times during the year.

HOBSCOTCH (register)

HOBSCOTCH is an eight-week program for adults with epilepsy who have self-identified memory problems. Program participants work one-on-one with a memory coach to find ways to manage and cope with memory problems in order to lead happier, more productive lives. This program is offered year-round.

Positive Vibes

A 6-week, program that’s specifically geared to help young adults with epilepsy and I/DD better manage stress and anxiety. This group is offered at various times during the year.

Contact Us

EAWCNY has epilepsy educators focused on providing information and support to children, adults, and families dealing with the challenges of epilepsy. Contact the epilepsy educator in your area if you have questions about epilepsy, seizures or wish to learn more about our services.

Western NY/Finger Lakes/Rochester

Michael Radell
Education Coordinator/Camp Director
Phone: (585) 442-4430 ext. 2741
Email: mradell@epiny.org

Central/Syracuse and Southern Tier/Binghamton Regions

Kristen Oderkirk, MSW
Community Educator
Phone: (315) 477-9777 ext. 2906
Email: koderkirk@epiny.org