Thursday, June 21, 2018

Studio E Program

We are excited to offer Studio E: The Epilepsy Art Program to people with epilepsy in the Rochester area!

This year’s program will be taking place on Thursdays at 3:00 PM – 5:00 PM, stating June 21st through August 2nd (Except for July 5th)

Studio E offers group art therapy sessions for adults with epilepsy, allowing them to explore their creativity, meet others with epilepsy and express themselves in an open, accepting and safe group setting. Studio E is offered for free thanks to the generous support of our partners, Lundbeck and OWP Pharma/ROW Foundation.


For more information about the Studio E program, or to enroll in this year’s sessions, contact Mike Radell from Epilepsy-Pralid Inc. at mradell@epiny.org or call
585-442-4430 ext. 2741.

Start: June 21, 2018
End: August 2, 2018
Time: 3:00p-5:00p
Venue: Spotted Rabbit Studio
Address: 115 Metro Park
Rochester, NY 14623

Studio E Program
Tuesday, July 10, 2018

Community Mosaic Project

Please join us for a series of FREE mosaic making workshops open to youth (ages 5+) and adults with a disability.

Workshops are facilitated by art therapists Sarah Beren, LCAT and Mark Rodgers, MS at Spotted Rabbit Studio. Youth ages 5+ and adults with a disability, as well as their caretaker, are welcome to participate. Space is limited.

Workshop Schedule:

Ceramic Tile Making Workshops
Tuesday June 12th 10-12pm | Saturday June 23rd 1-3pm | Tuesday June 26th 3:30-5:30pm

Glazing Workshops
Tuesday July 10th 3:30-5:30pm | Saturday July 21st 10-12pm

Mosaic Assembly Workshops
Saturday August 11th 1-3pm | Tuesday August 14th 3:30-5:30pm

Grouting Workshop
Tuesday August 21st 10-12 pm

Individuals may register online or by calling Mike Radell (585)442-4430 X2741

Join Us

Start: July 10, 2018
End: August 21, 2018
Time:
Venue: Spotted Rabbit Studio
Address: 115 Metro Park,
Rochester, NY 14623

Community Mosaic Project
Sunday, August 12, 2018

Camp EAGR and Camp Coast

Come to Camp EAGR/Camp Coast and enjoy a week of swimming, horseback riding, rock wall climbing, laughing and having fun with kids who also have epilepsy.

Camp EAGR is for children 8-17 with epilepsy and their siblings. Camp Coast is for young adults with epilepsy, aged 18+.

Please register and pay a $25 deposit per camper by 7/28/2018. Contact our camp director, Mike Radell, with any questions at (585) 442-4430 x2741 or mradell@epiny.org


Register Today

Start: August 12, 2018
End: August 18, 2018
Time:
Venue: YMCA Camp Weona
Address: Warsaw, NY

Sunday, August 12, 2018

Out of the Shadows 5k

Join us for the 2nd Annual Out of the Shadows 5K

Registration begins at 9am.

There will be raffles baskets, 50/50 and places for kids to play during the event.

Last year Out of the Shadows raised over $15,000 for support and education to help people and families dealing with epilepsy.
We know with your help, we will reach this year's goal of $20,000!

All funds raised will benefit Epilepsy-Pralid, Inc.

If you have any questions, please contact Denise Ester in our Development Office at (585) 442-6420 x2263 or dester@epiny.org

Please Register or Donate Today!

Start: August 12, 2018
End: August 12, 2018
Time: 9am
Venue: Otsiningo Park
Address: 1 Otsiningo Park
Binghamton NY

Out of the Shadows 5k
Friday, August 31, 2018

2018 Friends and Family Day

Buy your tickets today for the 2018 EPI Friends & Family Day!

Tickets are $5 each and include a picnic dinner and admission to the game.

Food opens at 6pm and the game starts at 7:05pm.

Fireworks are following the game.

Individuals who receive EPI services and children under 4 are FREE.

If you are a participant in one of our programs, or if you have questions about registration, please call Jim Riordan at (585) 442-6420.

Thank you!

Get your tickets!

Start: August 31, 2018
End: August 31, 2018
Time: Food: 6pm Game: 7pm
Venue: Frontier Field
Address: 1 Morrie Silver Way
Rochester, NY 14608

2018 Friends and Family Day
Sunday, September 23, 2018

Tanya's Trot for Epilepsy 5k Run/Walk

Join us for the 7th Annual Tanya's Trot for Epilepsy 5K Run/Walk. 5k course is officially certified and timed. Other event activities include an epilepsy information booth, baskets and side raffles, and light refreshments.

Tanya's Trot is held in memory of Tanya Johannes, who passed away due to SUDEP in November 2010.

Help us to raise funds to support epilepsy services and research as well as increase awareness of epilepsy and the devastating consequences seizures can have.

Denise Ester
dester@epiny.org
(585) 442-6420 x2263

Register today!

Start: September 23, 2018
End: September 23, 2018
Time: 2pm
Venue: Veterans Park
Address: Buell Street At Skyline Drive
Akron, NY 14001

Thursday, November 15, 2018

CURE Foundation Frontiers in Research Seminar Series: Understanding and Coping with the Risks of SUDEP

Epilepsy-Pralid, Inc. and the University of Rochester Medical Center are excited to host a timely research seminar for medical professionals, family and community members about the risks of sudden unexpected death in patients with epilepsy (SUDEP). The workshop will include presentations by leading medical experts, a panel discussion by parents who lost a child due to sudden death, and a presentation about the recent NYS Legislation for Reporting of SUDEP (Senate Bill S2422). The keynote speaker is Dr. Cynthia Harden, who authored the practice guidelines for SUDEP incidence and risk factors.

Both medical professionals and community members are welcome!

Tickets are:
$80 for medical professionals with 5 hours of CME
$15 for medical professionals without CME
$10 for community members

This event is underwritten by the CURE Foundation and Tanya's Trot.

For more information, contact Mike Radell at (585) 442-4430 x2741 or mradell@epiny.org

Register today!

Start: November 15, 2018
End: November 15, 2018
Time: 9am - 5pm
Venue: University of Rochester Medical Center
Address: