Wednesday, March 13, 2019


Come to our third meeting of a new recreation program for families dealing with the challenges of epilepsy. Dinner and Fun will be provided! Meet us at Radio Social at 5pm for the fun!

Questions? Contact Mike Radell at or (585) 442-4430 x2741

Start: March 13, 2019
End: March 13, 2019
Time: 5pm - 7pm
Venue: Radio Social
Address: 20 Carlson Rd, Rochester, NY 14610

Thursday, March 14, 2019

Syracuse Epilepsy Community Networking Group - Dinner with LivaNova

LivaNova, makers of the VNS, are joining us for dinner and a presentation at our March Syracuse Epilepsy Community Networking Group. Learn more about Vagus Nerve Stimulation.

For more information and to RSVP, please contact Kristin Oderkirk at 315-477-9777 ext. 2906 or email:

Start: March 14, 2019
End: March 14, 2019
Time: 6pm - 8pm
Venue: Central New York Philanthropy Center
Address: 431 E Fayette Street
Syracuse, NY 13202

Thursday, April 4, 2019

Psychogenic Non-Epileptic Attacks (PNEA)

Have you been told that you don't have epilepsy even though you have seizures?

Join us to learn about what may be called psychogenic seizures or psychogenic non-epileptic events/seizures/attacks. This is series of four sessions focused on learning how to manage this condition.

John Langfitt, PhD of Strong Epilepsy Center at URMC will be facilitating these meetings along with Denise Eshenaur, LCSW.

Sessions will be Thursdays in April: 4/4, 4/11, 4/18 and 4/25.

Please RSVP by April 1 to Denise Eshenaur.

Denise Eshenaur
(585) 442-4430 x2768

Start: April 4, 2019
End: April 25, 2019
Time: 7pm - 8:30pm
Venue: Epilepsy-Pralid, Inc South Ave Campus
Address: 1650 South Ave, Suite 300
Rochester, NY 14620

Sunday, June 2, 2019

Camp Coast

Have the week of your life with other young adults (aged 18+) with epilepsy and developmental disabilities!

Questions, contact our camp director Mike Radell
(585) 442-6420

Register today!

Start: June 2, 2019
End: June 7, 2019
Venue: Rochester Rotary Sunshine Camp

Sunday, August 11, 2019


Have the week of your life at a overnight summer camp just for kids with epilepsy, aged 8-17! Siblings are welcome too!

Questions! Ask our camp director, Mike Radell
(585) 442-4430 x2741

Register for Camp EAGR

Start: August 11, 2019
End: August 17, 2019
Venue: YMCA Camp Weona

Friday, November 9, 2018

Talk About It: Fall Teen Epilepsy Weekend

Are you a teen living with epilepsy? Want to spend time with other teens with epilepsy? Ask doctors questions? Have fun?

Come to our Fall Teen Epilepsy Weekend! All teens with epilepsy who are self-medicating are welcome to come.

Questions? Contact Mike Radell at or (585) 442-4430 x2741.


Start: November 9, 2018
End: November 10, 2018
Venue: Hampton Inn & Suites Rochester/Henrietta
Address: 280 Clay Rd, Rochester, NY 14623